All posts by walksabina

Dear Pain Matters blog readers, My name is Sabina Walker, and I completed a Master in Applied Science (Neuroscience). I chose to focus on the topic of nerve pain because someone close to me has complex regional pain syndrome (CRPS) following crush injury to several fingers. My current goals are to expand this blog called Pain Matters including blog readership. Thereafter, I may pursue a PHD involving Heart Rate Variability in Nerve Pain Patients. I may also write a book on chronic pain including nerve pain. After all, Pain Matters to all of us! Please seek as much help as you can if you are suffering from chronic pain including nerve pain. There are many References included in this blog to assist. Also, please feel free to share your own nerve pain experiences (and any recoveries) via this blog! After all, if you suffer from nerve pain, your experience is worth a 1000 words in any textbook! Wishing hope, inspiration and less pain in this world! Sabina Walker Master Applied Science (Neuroscience) PS If you find any of my Blog Posts interesting or useful, please feel free to share it around amongst your family, friends, colleagues and/or others, via Facebook, LinkedIn, etc. At the end of the day, pain matters to everyone including: - People who live with chronic pain; - People who care for people who live with chronic pain; - People who know people who live with chronic pain; and/or - People who are simply interested in pain matters. So please help get the word out....pain matters to all of us, directly or indirectly! PPS For interested readers, the respected Prof. Peter Drummond and I published the following 24-page Review Paper: Sabina Walker, Peter D. Drummond. Implications of a Local Overproduction of Tumor Necrosis Factor-α in Complex Regional Pain Syndrome [Review Paper, 24 pages]. Pain Medicine (Dec 2011), 12 (12), 1784–807. DOI: 10.1111/j.1526-4637.2011.01273.x http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4637.2011.01273.x/abstract

Thanks To Dr Katinka’s Non-Invasive Treatments, Many CRPS Patients Are Enjoying Significant Recovery From CRPS

Dear Pain Matters blog readers,

As mentioned in earlier posts, Dr Katinka van der Merwe (aka Dr Katinka), a Chiropractor at The Neurologic Relief Center, Arkansas, USA, specializes in chronic pain including complex regional pain syndrome (CRPS).  Dr Katinka’s novel and non-invasive approach focuses on restoring balance in the autonomic nervous system, with particular emphasis on the vagus nerve (‘the wandering nerve’).  As a result, Dr Katinka’s treatments may successfully reduce, and even eliminate, pain and inflammation as well as enhance function and mobility in many CRPS and other pain patients.  In doing so, she has literally given back their lives!

Dr Katinka’s unique medical talents for treating chronic pain are amongst the best in the world.  Furthermore, Dr Katinka’s compassion and empathy for each of her patients adds a touch of humanity to a field of medicine that (all-too-often) appears disengaged and disconnected with the actual depth of pain and suffering endured by so many chronic pain patients.

This blog post will review 10 CRPS patients who were successfully treated by Dr Katinka.  I urge the reader to watch at least some of the YouTube links.  Like me, you will (likely) be very touched by their stories of recovery from CRPS.

It is exciting to reveal that 7 of these 10 patients achieved COMPLETE pain relief following Dr Katinka’s 10-week treatment program!  Please click on the following table to view a summary of 7 CRPS patients who now enjoy nil pain.

Table – 7 CRPS Patients Who Recovered From CRPS

The following 3 CRPS patients enjoyed significantly less pain following completion of Dr Katinka’s 10-week treatment program:

  1. Debbie (retired), whose pain levels no longer exceed 2;
  2. Kristin, whose pain levels were 2, post-treatment, compared to 7, pre-treatment; and
  3. Billi, who was finally able to extend her left leg, post-treatment.

Details of 10 CRPS Patients Successfully Treated By Dr Katinka

1. Carlos’ CRPS Story

Carlos was in a serious auto accident in 2005 that resulted in spinal cord injury and other injuries as well as constant and severe pain for 7 years.  He was formally diagnosed with CRPS 2 years later in 2007.  His CRPS started in his abdominal area and affected his entire digestive system.  His CRPS spread throughout his entire body following TENS treatment.

Carlos had to use a wheelchair and a cane due to severe pain from CRPS.  He was unable to eat solid food.  Drinking water even hurt.  His eyes had a constant burning sensation and he became sensitive to light.  Having said that, he was grateful that his vision remained unaltered.

Carlos tried everything to control his pain including pain medications, spinal injections, epidurals and a spinal stimulator implant.  Unfortunately, his severe pain levels exceeding 10 continued to torture him.

Despite Carlos having given up on hope and even on life itself, his wife convinced him to see Dr Katinka as a last resort.  When Dr Katinka met Carlos for the first time, he was unable to eat more than a couple spoons of chicken broth at a time.  The latter even caused hours of excruciating pain for Carlos.

Quoting Dr Katinka,

Carlos was white as a sheet, and utterly without hope. His pain was carved into his face for the world to see. He came in with his wife. She told me that she was afraid that Carlos would take his own life if they could not find relief soon. She had convinced him to try just one more doctor. With them that day was their nine-month old baby, Sean. I remember looking at that little boy and trying to imagine his life without his father in it to see him grow up. Carlos finally looked up and said: ‘You can’t help me. No one can help me. I am here because my wife asked me to come.’

Despite his dire state of health, Dr Katinka proceeded with her gentle upper cervical treatment on him.  To both of their surprise and for the first time in 6 years, his pain levels dropped dramatically from a 10 to a 3 following her manual procedure of his upper neck area!  Carlos finally obtained relief from his constant burning pain within the first 15 minutes of his first treatment!  What a pleasant surprise after suffering severe and constant pain due to full-body CRPS for 6 entire years!  To top this off, Carlos celebrated this milestone by finally eating a full-course dinner without pain for the first time in 5 years.

He was a changed man when he came back for his second day of treatment.  His colour had returned as did his ‘life spark’.

After his 3rd day during Week 1 and after only 3 treatment sessions with Dr Katinka, his pain levels dropped to a 2 … and then to a 1.  In fact, some parts of his body were not even sensing pain anymore!

After Week 6 at the Center, he was down to only one pain medication (from several pain medications).  Furthermore, his pain levels remained at 1 or 2.

Twelve weeks later, Carlos was completely pain-free.

Three (3) years later, Carlos stated that he was still 99% better, and that he no longer needed any pain medications.  This demonstrates the lasting benefits of Dr Katinka’s 10-week pain program.

Almost five years later in 2016, Carlos is still pain-free.  He is now working as a pastor and travels all over the world.  Whilst he has faced physical challenges since then including gallbladder surgery, he has no sign of CRPS returning.

(Carlos was interviewed 3 times by Dr Katinka – twice during his 10-week pain treatment program and a third time 3 years after his successful treatment for CRPS.)

https://www.youtube.com/watch?v=pYE0aW1cTh8

https://youtu.be/tC_JyDfvexM

http://seeingyouwell.com/testimonials/

http://rsds.org/new-approach-rsd-crps/

2. Brock’s CRPS Story

Brock suffered CRPS for 10 months following a broken ankle in January 2015.  Brock was bedridden for 10 weeks due to excess pain from CRPS that also spread to his other leg.  Brock was on crutches for 7 months.  By now, his CRPS-affected leg comprised mainly of skin and bone, with only a little bit of calf and thigh remaining.  The bulk of his muscle mass in his CRPS-affected leg was gone.  Somewhere along the way, Brock also lost his job.  Needless to say, CRPS significantly changed his life for the worse in every conceivable way.

In addition to ‘tonnes of medication’, he had 4 sympathetic nerve blocks.  Unfortunately, this did not offer the pain relief that Brock needed in order to function properly.

When asked about any neck injuries by Dr Katinka, Brock confirmed that, in fact, he did have a prior neck injury prior to developing CRPS.

Brock described his first treatment during his trial week with Dr Katinka that involved gentle hands-on upper cervical manipulation as follows (quoting):

‘…completely painless, … I’ve had no side effects … no pains from the treatments  … Nothing … Amazing.’

Dr Katinka asked him, ‘So your pain level right now is?’

Brock answered, ‘I’m  a zero … zero.’  (He laughs.)

Dr Katinka enquired, ‘How does it feel?’

Brock happily replied ‘I’m smiling for the first time in a long time.  I haven’t been at a zero in almost a year now … and I’ve been amazed … 5 seconds into the first treatment … I was pain-free.’

Dr Katinka stated, ‘I’m so excited!’

Brock chuckled, ‘Me too … me too!’  

https://www.youtube.com/watch?v=MU7ggYcdJO4

3. David’s CRPS Story

David suffered CRPS in his right foot for almost 3 years following right foot surgery to remove a bunion and straighten out a ‘hammer toe’.  This was followed by a second surgery to remove a nerve from his right foot due to pain.  After these surgeries, David started having severe pain and swelling in his CRPS-affected right foot.

Post-CRPS, David walked with a cane, crutches and/or used a wheelchair due to pain.  He has his own wheelchair ramp built behind his house.  David was no longer able to drive or do anything else.  David was afraid to move for fear of making the pain worse than it already was.

As a result of the severe and unrelenting pain, David became extremely depressed.  Quoting David,

‘Depression … got so bad that, twice, I took very seriously about taking my own life … but … [my wife] … told me that there is only one that can give live and one has the authority to take life…’ 

Whilst his CRPS did not spread, his severe pain levels ranged from 11 to 13 (out of 10).

Quoting David, ‘The pain medications just numb the pain.  You have to keep it up, you’re drugged out … can’t do anything … your life is gone.’

In addition to morphine, Oxycontin and Hydromorphone, David also tried nerve blocks, without success.

On his first day at the Center, Dr Katinka asked David to lie on the treatment table for a diagnostic test.  As she chatted to David, Dr Katinka applied pressure to his neck and underneath his skull.  As she continued to apply gentle pressure in this area, his pain levels started to decrease dramatically until they reached a 2!  The pain levels did not, however, stop there.  Instead, they dropped even further as Dr Katinka continued to apply gentle pressure.  Guess what happened next??  David’s pain levels were finally at zero!  Imagine that!!  Zilch pain!!  Wow!!

After completing his trial (first) week at The Neurologic Relief Center, his right foot no longer appeared red and swollen.

Five (5) weeks later at the Center, David finally enjoyed complete pain relief and his right foot was not swollen.  David’s story of recovery from CRPS in his right foot is nothing short of amazing!

During his last 2 days at the Center, David intentionally left his walking cane in his motel room.  He was now able to walk on his own 2 feet without pain.

David’s wife, Debbie, said to Dr Katinka, ‘You have … a special heart for people in chronic pain, and it shows.’

Dr Katinka answered softly, ‘Thank you.  I do.  Especially RSD…’   

Before seeing Dr Katinka, David was in so much pain and pain-induced stress.  Now that his pain, and the stress relating thereto, was gone, David is finally looking forward to going fishing again on his own fishing boat.

David finally has his life back!  What could be better than that?? 

https://www.youtube.com/watch?v=hWIaMBhcvA0&sns=em

4. Madi’s CRPS Story

Madi, a teenager from Arkansas, sustained serious injuries including a fractured arm in a roll-over car accident 6 years ago when she was only 13.  Thereafter, Madi developed CRPS in her fractured arm that spread to her middle to lower part of her back as well as her entire left leg.  Her pain was sometimes so severe that she had difficulty walking.

Madi tried many different pain treatments including nerve blocks and lumbar blocks.  She has 2 stimulators surgically implanted in her back as well as a pump.  Sadly, the 2 stimulators did not reduce her pain levels at all.  While the pump offered some relief from her pain, it did not offer the amount of pain relief that she had hoped for or that she needed in order to function properly.

Madi underwent a chemical ablation (ie Phenol neurolysis) to burn her sympathethic nerve.  Sadly, this medical procedure only made her pain worse.  Madi took medication to help her sleep through the night despite the pain.

Madi felt guilty for being in pain all the time.  She felt like a burden to her family.

Understandably, Madi was sceptical about seeing Dr Katinka for the first time.  After all, no one else had been able to help her since her serious car accident 6 years ago.

However, Madi’s doubts quickly vanished after her first appointment.  When Dr Katinka performed a diagnostic test involving a gentle and non-invasive upper neck manipulation, Madi’s pain levels dropped to zero for the first time in 6 years since her car accident!  Wow!! This 100% pain relief lasted for an entire 40 minutes.

Needless to say, after her first day at the Center, Madi was eager to return for more treatments!  Even after 2 weeks (including during her YouTube interview), Madi stated that her pain levels were nil!  This is great news!

In closing, Madi’s mom said (quoting),

‘There is no amount of money that could ever give us what we have now, and it’s [Dr Katinka] that gave us that … And we talked about how her pain was locked, and how [Dr Katinka had] the key that unlocked it and made it go away…’

(Madi had just completed 2 weeks of her 10-week pain program at the Center when this interview was done.)

https://www.youtube.com/watch?v=IVqSGHwmf-E

5. Scott’s CRPS Story

Scott suffered from CRPS for 2 years following carpal tunnel surgery to his right hand.  Scott’s pain extended from his fingertips in his right hand up his right arm and to his neck.  His pain levels in his right hand were excruciating and would always reach 8 to 10 by afternoon.  Consequently, by the end of each day, he did not want to do anything at all.

His daily pain medications included massive amounts of Gabapentin and Ibuprofen.  He also tried numerous nerve blocks as well as 5 ketamine infusions.  While the effects of the first ketamine infusions seemed promising, the actual pain relief offered by the remaining 4 ketamine infusions lasted only 2-3 weeks each.

After only 4 days of treatment with Dr Katinka, the pain from Scott’s right wrist to his neck vanished.  While there was some lingering pain in his fingers in his right hand (with pain levels at 1), this was significantly more tolerable than before.

During her gentle hands-on upper cervical manipulation, Dr Katinka confirmed that the right side of Scott’s neck had felt a bit abnormal.  Dr Katinka’s chiropractic treatment of Scott’s upper cervical area aimed to ease the pressure on his vagus nerve.  In so doing, she increased the activity of his vagus nerve.

Research by Dr Kevin Tracey shows that increased efferent vagal activity can lead to drastically reduced localised inflammation (Walker & Drummond, 2011).  This would, of course, include any inflammation in David’s CRPS-affected right hand including fingers.  Decreased inflammation often leads to less pain, and in some cases, nil pain.

And this is exactly what happened to Scott during the upper cervical procedure!

In response to her question, ‘What is your pain like?’, Scott replied,

‘Right now it’s a zero.’

Dr Katinka said, ‘Zero! That’s awesome!‘

When Scott was asked whether he had ever experienced nil pain in the past 2 years, he replied that until now, the only time he could not feel his pain was during sleep.

https://www.youtube.com/watch?v=3p1dOOHDuio

6. Barbara Wall’s CRPS Story

Barbara Wall worked as a registered nurse for 25 years.  In 2005, Barbara suffered a broken neck due to a severe injury to her cervical spine as well as other injuries.  She was also diagnosed with full-body CRPS.  Thereafter, Barbara was forced to quit nursing in order to focus on her health issues and constant pain resulting from CRPS, her broken neck and other injuries.

Barbara underwent daily physical, occupational and pool therapy.  In addition, she was offered various pain medications, numerous stellate ganglion blocks, lumbar sympathetic blocks and cervical epidural steroid injections, without any success.

Following a successful spinal cord stimulator (SCS) trial, Barbara received an SCS implant.  This finally offered some pain relief enabling Barbara to continue with daily physiotherapy plus 2 hours of pool therapy.

Barbara describes 10 years of full-body CRPS as ‘mind blowing, traumatic, overwhelming, and most of all changing’.

Then one day in June 2015, Barbara’s CRPS worsened when she ‘made a simple movement with [her] neck and felt a horrible pop with lightning pain … the pain was intense’.  Barbara’s SCS was no longer able to provide pain relief leading to weeks of sleepless nights.  Tests finally revealed that 2 of her discs in her neck were so badly damaged that her SCS paddle had shifted to the right, rendering it completely ineffective on the left side.  Corrective surgery was considered too risky as it could make her CRPS even worse.

Barbara’s pain levels were at 8 out of 10 when she met Dr Katinka for the first time on 12 October 2015.  These pain levels dropped to 4 after her first non-invasive, drug-free and painless treatment with Dr Katinka.

Following completion of Dr Katinka’s 10-week pain program, Barbara’s pain levels are now zero most of the time.  Barbara was also able to stop all of her pain medications.

Quoting Barbara:

‘…there is hope in hopeless situations.  Even with my continued spine issues and the need for surgery on my cervical spine, I have been able to maintain low to no pain with my RSD.  I cannot tell you how amazing it is after ten years of chronic pain to actually sleep throughout the night, to not feel like you are burning from within…’

http://rsds.org/journey-back-health-rsd/

7. Brenda’s CRPS Story

Brenda suffered from CRPS since January 2010 and her pain levels used to range between 8 to 10 ‘pretty much all the time’.

After 4 weeks of non-invasive treatment at the Center, Brenda no longer takes any pain medication.  Best of all, Brenda no longer has pain.

(No other details were provided during this short 1-minute YouTube interview.)

http://seeingyouwell.com/testimonials/

8. Debbie’s CRPS Story

Debbie suffered from CRPS for 12 years following a surgical procedure in March 2004.  The anesthesiologist had hit a nerve while numbing her frozen shoulder.  As a result of severe pain due to CRPS, Debbie was no longer able to work.  She also became hypersensitive to clothing including sleeves.

Debbie took many different pain medications including Lyrica and Gabapentin.  She also underwent a spinal cord stimulator operation for her pain.

Debbie received frequency specific microcurrent and other non-invasive treatments at the Center from the end of February to May 2016.

Post-treatment at the Center, Debbie feels as if she ‘has a new lease on life … a second chance’.  Debbie and her husband were finally able to go on a 3-week road trip that included many rigorous activities such as 5-mile walks.

Debbie’s pain levels are now minimal and no longer exceed 2.  Debbie added that she no longer needs Lyrica, Gabapentin nor any other pain medication.  She has not turned on her spinal cord stimulator since February 2016.

In Debbie’s words, ‘It’s just amazing!’

(This interview occurred 6 months after Debbie’s successful treatment for CRPS at the Center in 2016.)

https://www.youtube.com/watch?v=yxgG6RfcrRY

9. Kristin’s CRPS Story

Kristin from Pennsylvania suffered from full-body CRPS for 9 years after injuring her T-spine at work.

Kristin tried many different treatments including a spinal cord stimulator trial.  However, the spinal cord stimulator had to be removed urgently due to the pain that it caused.  Sadly, during its removal, ‘they really yanked on it’.  This may have injured the lining of her spinal cord, making her pain worse.

After that, Kristin had numbness and tingling in both hands and arms, both feet and legs as well as on the left side of her face.  There was also increased burning pain and she bruised more easily.  She couldn’t work anymore due to CRPS.  Kristin could only sit and watch TV as well as sleep in the same recliner for years.  Sleeping in her bed was no longer a comfortable option.

After treatment by Kr Katinka, Kristen stated, ‘It’s basically been like a miracle.  It really has. … The first day, you were able to get rid of pain that I had in my mid back for 9 years.’

Overcome by emotion, Kristin started crying.  She continued, ‘I have so much less pain now … my RSD symptoms are still there … but cutting down on medication … I came in at a 7 and today I am leaving at a 2.’

She added, ‘It was definitely worth the 1,200 mile trip that we need, and the money, to come and see you … [Dr Katinka] is the best!’

(Kristin was interviewed on her last day at the Center after completion of Dr Katinka’s 10-week pain program.)

https://www.youtube.com/watch?v=ltc8fUKhmZM

10. Billi’s CRPS Story

Billi is a mother and a flight attendant who can no longer work due to pain from CRPS.  Her CRPS affected her entire left arm including hand, wrist, arm and left shoulder for the past 4 years.  Billi’s pain levels averaged 3 to 4.  Different factors affected her pain levels including daily temperature and activities.  Sometimes Billi woke up without pain.  However, as soon as she got up and moved around, her pain levels spiked.

Billi tried many pain treatments including bioenergy healing, biofeedback, acupuncture and lumbar injections.

One day, Billi accidentally fell backwards while going down some stairs in Paris, France.  This resulted in a hyperstretched nerve in her left leg that prevented her from extending out her left leg while walking.

Amongst different treatments offered at the Center, Billi had frequency specific microcurrent on her left leg.  After this treatment, Billi was finally able to stretch and extend out her left leg while sitting and walking.

When asked what CRPS took away from her, Billi replied that CRPS took away her entire life including her beloved job as a flight attendant.  She added that she would love to go back to her job.  CRPS had also drastically changed her role as a mom.

Dr Katinka added, ‘Our goal is so much bigger than getting you out of pain.  It’s getting you back to your life.’

Billi started to weep softly upon hearing these kind and compassionate words.  Touched by Billi’s tears of hope and gratitude, it didn’t take long for tears to also start welling up in Dr Katinka’s eyes.

(This interview was done at the end of Billi’s first week at the Center, with more treatments planned and further progress expected for Billi.)

https://www.youtube.com/watch?v=TpMSqe_aXk0

Summary

Dr Katinka strongly emphasizes that The Neurologic Relief Center does not aim to:

  • Numb the pain;
  • Use calmare;
  • Use ketamine; or
  • Claim to cure CRPS.

Instead, the Center aims to re-balance the central nervous system (CNS), and in particular, the autonomic nervous system including the parasympathetic nervous system (i.e. the vagus nerve).  This will allow for optimal healing from within the body.  Once the autonomic nervous system balance is restored and vagal outflow increases, reduced inflammation, significant and/or complete pain relief as well as improved function and mobility may arise.

Dr Katinka’s non-invasive treatments for neuropathic pain and injury to the spinal cord include an upper cervical procedure to stimulate the vagus nerve – see below – and frequency specific microcurrent.

Patients who respond positively to the non-invasive treatments via a dramatic decrease in their pain levels during their first week (‘trial week’) at the Centre are invited to complete the 10-week pain program.

Upper Cervical Procedure To Stimulate The Vagus Nerve

Dr Katinka believes that CRPS is like ‘a perfect storm’ that may arise in the presence of an underactive vagus nerve.  This may occur following a neck or tailbone injury that could compromise its function.  In other words, Dr Katinka believes that an injury to the CNS that could affect the vagus nerve is a major risk factor (amongst other factors) for CRPS in some patients.

Dr Katinka’s gentle hands-on upper cervical diagnostic procedure is performed on each CRPS patient during the first day of the ‘trial 1-week’.  During this diagnostic test, CRPS patients are requested to lay on the treatment table.  This non-invasive and painless procedure enables Dr Katinka to diagnose whether an underactive vagus nerve exists.

In Dr Katinka’s experience, most, if not all, CRPS patients present with a hypoactive vagus nerve.  Furthermore, in her opinion, unless the problem in the CNS (being an underactive vagus nerve) is properly addressed, many may never get to the bottom of CRPS.  In other words, if one only treats the symptoms of CRPS including pain (via pain medications, ketamine, spinal blocks, spinal cord stimulator, etc), instead of addressing the actual cause for these symptoms (such as an injury in the CNS that affects the vagus nerve), one may never be able to help CRPS patients.

Dr Katinka’s gentle manipulation of the patient’s upper cervical region often results in stimulation of the vagus nerve.  In turn, this can reduce localized inflammation almost immediately that may lead to pain relief.  These manipulations are repeated throughout the 10-week program, as necessary.

Thanks to Dr Katinka and her team, many CRPS patients are finally able to enjoy their lives without pain, while many more CRPS patients benefit from reduced pain and increased function and mobility.

Often dreams become reality at The Neurologic Relief Center, Arkansas, thanks to Dr Katinka and her team!

Sabina Walker

Blogger, Pain Matters (in WordPress)

REFERENCES

Other Pain Matter Blog Links and References of Dr Katinka

The Wandering Nerve And CRPS

Frequency Specific Microcurrent And Other Non-Invasive Treatments For CRPS By Dr Katinka

Woohoo! Australia’s ‘One Girl’, Chantelle Baxter, Is Finally On The Road To Recovery From CRPS, Along With Other CRPS Patients, Thanks To Their Own Guardian Angel, Dr Katinka! 

Putting Out the Fire: A Brand New Approach to Treating RSD/CRPS (guest blog post, RSDSA website (12 April 2016)

http://rsds.org/new-approach-rsd-crps/

Academic References on the Efferent Vagus Nerve, Inflammation, Pain, etc

Walker, Sabina, Drummond, Peter D. Implications of a Local Overproduction of Tumor Necrosis Factor-α in Complex Regional Pain Syndrome [Review Paper]. Pain Medicine (Dec 2011); 12(12): 1784–1807 (24 pages).

http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4637.2011.01273.x/abstract

Patient YouTube Links and References of CRPS Patients

  1. Carlos’ CRPS Story

https://www.youtube.com/watch?v=pYE0aW1cTh8 (23 January 2015)

https://youtu.be/tC_JyDfvexM (8 June 2011)

http://seeingyouwell.com/testimonials/

Putting Out the Fire: A Brand New Approach to Treating RSD/CRPS (guest blog post, RSDSA website (12 April 2016)

http://rsds.org/new-approach-rsd-crps/

  1. Brock’s CRPS Story

https://www.youtube.com/watch?v=MU7ggYcdJO4 (21 December 2015)

  1. David’s CRPS Story

Groundbreaking CRPS Treatment by Dr Katinka

https://www.youtube.com/watch?v=hWIaMBhcvA0&sns=em (30 October 2015)

  1. Madi’s CRPS Story

https://www.youtube.com/watch?v=IVqSGHwmf-E (7 August 2015)

  1. Scott’s CRPS Story

https://www.youtube.com/watch?v=3p1dOOHDuio (28 May 2016)

  1. Barbara Wall’s CRPS Story

My Journey Back to Health: Barbara Wall and RSD (3 May 2016)

http://rsds.org/journey-back-health-rsd/

  1. Brenda’s CRPS Story

http://seeingyouwell.com/testimonials/ (a 1-minute YouTube)

  1. Debbie’s CRPS Story

https://www.youtube.com/watch?v=yxgG6RfcrRY (27 October 2016)

  1. Kristin’s CRPS Story

https://www.youtube.com/watch?v=ltc8fUKhmZM (30 May 2016)

  1. Billi’s CRPS Story

https://www.youtube.com/watch?v=TpMSqe_aXk0 (20 March 2015)

 

 

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The Wandering Nerve And CRPS

Source of Featured Image of the vagus nerve (‘the wandering nerve’).

https://en.wikipedia.org/wiki/Vagus_nerve

Dear Pain Matters blog readers,

As mentioned in earlier posts, Dr Katinka van der Merwe (aka Dr Katinka), a Doctor of Chiropractic at The Neurologic Relief Center, Arkansas, USA, specializes in chronic pain including CRPS.  Dr Katinka’s unique and non-invasive approach focuses on rebalancing the autonomic nervous system, with particular emphasis on the vagus nerve (‘the wandering nerve’).

18342291_1547231995308980_4613259570866324049_n.jpg

Source of photo of Dr Katinka:

https://www.facebook.com/TheNeurologicReliefCenter/?fref=mentions&pnref=stor

Dr Katinka has expertise in various non-invasive treatments including:

  • Upper Cervical Procedure (to stimulate the vagus nerve); and
  • Frequency Specific Microcurrent. 

These (and other) treatments may be beneficial for neuropathic pain and injury to the spinal cord and other painful conditions.

https://painmatters.wordpress.com/2017/04/29/woohoo-australias-one-girl-chantelle-baxter-is-finally-on-the-road-to-recovery-from-crps/

https://painmatters.wordpress.com/2017/06/20/frequency-specific-microcurrent-and-other-non-invasive-treatments-for-crps-by-dr-katinka/

This blog post discusses Jennifer, a CRPS patient who suffered pain levels up to ‘10’ on a daily basis for many years until she finally attended The Neurologic Relief Center (headed by Dr Katinka).  Happily, Jennifer obtained complete pain relief following non-invasive treatments for 5 weeks at this Center.

Jennifer’s CRPS 

Jennifer’s CRPS in her right foot occurred after a stress fracture to the top of her right foot in 2007/2008.  Her CRPS spread to her right arm, wrist and hand.  Jennifer also had spinal surgery 2 years ago that involved metal implants including a metal cage, plates and screws.

Jennifer suffered shooting and excruciating pain levels up to ‘10’, 24/7, as well as severe migraines.  Her pain made it difficult to do anything including walking, working and concentrating/focusing.  Her sleep was constantly interrupted by pain and she was unable to sleep with covers due to hypersensitivity.  Jennifer had difficulty wearing shoes in the daytime.  Needless to say, a life with severe and constant pain was very  debilitating for Jennifer.

Because pain is ‘invisible’, people who had no pain could not understand her (with the exception of her supportive husband).  It was hard for Jennifer to hear people tell her, ‘There’s nothing wrong with you’, when in fact she was in such agony and pain.

Jennifer tried various pain medications including Lyrica (at maximum dosages), morphine and Cymbalta.  Jennifer said that while these drugs made her think that her pain was better, they did not enable her to do anything or function properly.  Sadly, her pain never went away no matter how high the dosages were.

Dr Katinka’s Non-Invasive Treatment For Jennifer’s CRPS 

Dr Katinka does not treat CRPS directly.  In her words (quoting from both Youtubes, below):

‘The difference between how we treat RSD [CRPS], or the neurologic symptoms of RSD [CRPS], is that we do not treat pain.  We do not numb the pain.  We do not interrupt the pain signal.  We do not attack the pain signal.  We don’t try to interrupt the nerve signal … that is not what’s causing the RSD [CRPS].  The RSD [CRPS] is caused by a malfunction in the central nervous system.

We treat the central nervous system injury.  And unless you treat that, you will never, ever permanently get the RSD [CRPS] under control, in my opinion.’

Dr Katinka added that many patients have injuries in their upper cervical region or tailbone area. These types of injuries may affect the vagus nerve.  If left untreated, these injuries can affect the central nervous system, and in particular, the parasympathetic nervous system including the vagus nerve.  Ultimately, this may trigger CRPS.

As stated above, Dr Katinka’s team offered non-invasive treatment for Jennifer’s CRPS that includes a combination of:

  1. An upper cervical procedure – This involves gentle hands-on treatment of the very upper cervical region to release, stimulate and activate the vagus nerve.  This gentle treatment removes any pressure on the vagus nerve, hence instantly restoring vagus nerve function and reducing pro-inflammatories.  When this occurs, there can be an immediate decrease in pain.  This procedure is frequently repeated during the 10-week treatment period; and
  2. Frequency Specific Microcurrent (FSM) – This is done to treat:
    • Inflammation of the spinal cord including nerves and abnormal scar tissue (from Jennifer’s spinal fusion surgery 2 years ago);
    • Allergic reactions and toxicity – Jennifer’s back surgery involved metal implants in her spine including a metal cage, plates and screws.  These metal implants are at risk of releasing toxins that may trigger metal allergies; and
    • Stenosis (ie narrowing of the spinal canal).

Jennifer shared details of her 3rd week at the Center in the YouTube dated 26 July 2015 (see below). At this time, her CRPS-affected right foot was still swollen, compared to her unaffected foot.  Furthermore, her pain levels were at ‘8’ before beginning FSM.

Jennifer confirmed that her pain vanished during FSM treatment. Instead, she had a ‘hot/warm feeling of water on the foot, with no pain. Quoting Jennifer:

‘It feels funny … It just feels funny. I’ve been having pain for so long … You have to stop and think, ‘Look, there’s nothing [ie no pain] there.”

Pleased with Jennifer’s progress thus far, Dr Katinka stated:

We don’t have tissues here, do we? I must have made you cry [with happiness] … Oh, we do [have tissues].’

Jennifer added, ‘…It’s amazing … from one day to the next … how it feels…

After FSM treatment, Jennifer practiced walking slowly down a hallway under Dr Katinka’s caring supervision. Dr Katinka stated (quoting):

…You’re done with your treatment … And you are walking on your foot. Can you normally walk on it?

Jennifer answered, ‘Not very well. No. It really hurts … Yeah, this is really different…’

When Dr Katinka asked about her pain levels while walking down the hallway, Jennifer literally sang out, ‘A ‘2’!’

After 5 weeks of treatment, Jennifer’s right foot was still swollen and slightly sensitive. The good news was that Jennifer’s pain levels were now down to ZERO (ZILCH!) for the past 2 days! Wow!  What fun!  She was also able to sleep throughout the night now, something that she had not enjoyed for years. Woohoo!

Other CRPS Patients Successfully Treated By Dr Katinka

For dozens of other CRPS success stories, please follow the links in:

https://painmatters.wordpress.com/2017/04/29/woohoo-australias-one-girl-chantelle-baxter-is-finally-on-the-road-to-recovery-from-crps/

and

https://www.facebook.com/TheNeurologicReliefCenter/?fref=mentions&pnref=stor

Summary

Dr Katinka’s non-invasive combination treatment that focuses on rebalancing the autonomic nervous system including vagus nerve may offer pain relief and improved function for some chronic pain patients including CRPS patients.

For more on Dr Katinka’s unique insights into CRPS, please click her following guest blog post on the RSDSA website:

Putting Out the Fire: A Brand New Approach to Treating RSD/CRPS (12 April 2016)

http://rsds.org/new-approach-rsd-crps/

Thanks to Dr Katinka and her team, Jennifer is finally able to enjoy her life without painful CRPS!

Sabina Walker

Blogger, Pain Matters (in WordPress)

REFERENCES

Jennifer’s CRPS Story – 2 YouTubes by Dr Katinka van der Merwe

(1A) Jennifer’s CRPS Story (26 July 2015) (6-minute YouTube)

(1B) Jennifer’s CRPS Story (continued on 10 August 2015) (8-minute YouTube)

https://www.youtube.com/watch?v=PLkqMzLv9Xw

Frequency Specific Microcurrent for Pain 

(2A) McMakin, Carolyn. Frequency Specific Microcurrent in Pain Management (3 December 2010); Pages 1-256.

eBook ISBN: 9780702049255
Paperback ISBN: 9780443069765

https://www.elsevier.com/books/frequency-specific-microcurrent-in-pain-management/mcmakin/978-0-443-06976-5

(2B) McMakin, Carolyn. Nonpharmacologic Treatment of Neuropathic Pain Using Frequency Specific Microcurrent. The Pain Practitioner (2010); 20(3); 68-73.

(2C) Thomas, Brooke. Carolyn McMakin: The Resonance of Repair (A 68 Minute-Podcast Interview with Carolyn McMakin). Liberated Body (23 December 2014); LBP 030.
(2D) Treating RSD/CRPS With Frequency Specific Microcurrent (a 75-minute YouTube done 18 September 2014 by Dr Carolyn McMakin)
(2E) Other YouTubes By Dr Carolyn McMakin

 

 

 

 

 

 

Frequency Specific Microcurrent And Other Non-Invasive Treatments For CRPS By Dr Katinka

Source of Featured Image of Dr Katinka van der Merwe:

https://drkatinka.com/about/

Dear Pain Matters blog readers,

As mentioned in the previous blog post, Dr Katinka van der Merwe (aka Dr Katinka) at The Neurologic Relief Center, Arkansas, USA, has expertise in various non-invasive pain treatments including Frequency Specific Microcurrent (FSM).

https://painmatters.wordpress.com/2017/04/29/woohoo-australias-one-girl-chantelle-baxter-is-finally-on-the-road-to-recovery-from-crps/

For more on Dr Katinka’s unique insights into CRPS, please click her following guest blog post on the RSDSA website:

Putting Out the Fire: A Brand New Approach to Treating RSD/CRPS (12 April 2016)

http://rsds.org/new-approach-rsd-crps/

Frequency Specific Microcurrent is a very small current – so small that it can not even be detected by sensory nerves.  As such, it is not painful.  In fact, this current is similar to the current that is naturally produced by each cell in our body.

The FSM device (now FDA-approved) is used to treat nerve pain and injury to the spinal cord as well as many other chronic and painful conditions (see References).  Its co-founder and FSM expert, Dr Carolyn McMakin, even used this system to successfully treat her own son for CRPS.

Sunday’s Treatments For CRPS Including Frequency Specific Microcurrent (FSM) 

Sunday is a welder by trade who lives with her young daughter in Texas.  Sunday used to enjoy an active life that included basketball and softball.

Unfortunately, Sunday had a motor vehicle accident (MVA) that involved rolling her truck 6 times.  Tragically, Sunday suffered severe headaches for 3 years after this MVA.  Sunday said that her intense headaches affected 7 areas in her head including the right side, adding that they felt like a knife going in and out of her head.

Shortly after her MVA, Sunday developed severe CRPS that affected her right hand to above her right elbow.  Even a light touch on her right arm was excruciating.  Sunday also had complete numbness in all 3 middle fingers in her right hand as well as some swelling in her right forearm and hand.

Sunday stated that her severe pain never went away after her MVA, with the exception of 3 days of relief obtained during a nerve block done to the back of her head.  Her pain levels were always ‘5’ or greater, regardless of her pain treatment.  Sunday also tried epidurals (where her entire right arm was numbed), Botox injections, electroshock therapy, topical pain medications, acupuncture and many more pain treatments. Sadly, nothing helped.  Sunday stated that her severe and unrelenting pain was starting to affect her mental state.

In 2015, Sunday travelled interstate from Texas to Arkansas in the hope that she might find some pain relief at The Neurologic Relief Center, headed by Dr Katinka.  Dr Katinka’s non-invasive treatments were different from Sunday’s other pain treatments to date.  This is because Dr Katinka focused on treating the original injury caused by her car accident.  In Dr Katinka’s view, Sunday likely sustained an injury to her upper cervical region during her motor vehicle accident that may also have led to CRPS in her right arm.

Following treatment of her injured upper cervical spine on her first day, Sunday’s pain levels dropped to a ‘4’. After her 2nd day of treatment, Sunday’s pain dropped further to a ‘3’.  On her 3rd day of treatment, Sunday’s pain was a ‘4’ prior to undergoing FSM.

Guess what happened next??

During her 1st FSM treatment on her 3rd day, Sunday started to feel some tingling in her 3 fingers!  Wow!!  (Until now, Sunday had endured 3 years of numbness in these 3 middle fingers, post-MVA.)  Sunday’s pain levels also dropped to a ‘3’ after FSM.  Finally, there was no more pain above Sunday’s wrist and her pain was now limited to the base of her wrist following her successful FSM therapy.

In Sunday’s words,

‘It does not hurt [above the wrist] … It’s awesome … It’s awkward … It’s weird … Just my joints are sore, but everything else is not [sore] …’

Thus, Sunday felt more than 50% better within only 1 week of treatment at The Neurologic Relief Center!  Sunday’s pain due to CRPS was now limited to her right wrist only and a tingling sensation had finally returned to her 3 fingers for the first time after 3 years of numbness following her MVA.  The swelling in her right arm was also reduced.

Sunday’s first week at The Neurologic Relief Center offered hope that a life with less pain and greater right hand function was now possible!  Sunday was excited about completing the full 10-week treatment program at this Center shortly.

Other CRPS Patients Successfully Treated By Dr Katinka

For dozens of other CRPS success stories, please follow the links in:

https://painmatters.wordpress.com/2017/04/29/woohoo-australias-one-girl-chantelle-baxter-is-finally-on-the-road-to-recovery-from-crps/

and

https://www.facebook.com/TheNeurologicReliefCenter/?fref=mentions&pnref=stor

Summary

Frequency Specific Microcurrent may offer pain relief and improved function for some chronic pain patients including CRPS patients.  As such, FSM warrants further investigation (see References for papers by FSM expert, Dr Carolyn McMakin).

 

It is heart-warming to see that some CRPS patients such as Sunday are finally getting their lives back thanks to passionate and compassionate Pain Doctors including Dr Katinka!

Sabina Walker

Blogger, Pain Matters (in WordPress)

REFERENCES 

Sunday’s CRPS Story – 3 YouTubes by Dr Katinka van der Merwe

(1A) Sunday’s 1st Day of Treatment for CRPS (16 March 2015)

https://m.youtube.com/watch?v=6oS-_tZRcmQ

(1B) Sunday’s 3rd Day of Treatment for CRPS (18 March 2015)

https://www.youtube.com/watch?v=nf_3GoygF4s

NB This YouTube includes a discussion of Frequency Specific Microcurrent (FSM).

(1C) Sunday’s 5th Day of Treatment for CRPS (20 March 2015)

https://m.youtube.com/watch?v=Ddl-iXxpJDU

Frequency Specific Microcurrent (FSM) for Pain 

(2A) McMakin, Carolyn. Frequency Specific Microcurrent in Pain Management (3 December 2010); Pages 1-256.

eBook ISBN: 9780702049255
Paperback ISBN: 9780443069765

https://www.elsevier.com/books/frequency-specific-microcurrent-in-pain-management/mcmakin/978-0-443-06976-5

(2B) McMakin, Carolyn. Nonpharmacologic Treatment of Neuropathic Pain Using Frequency Specific Microcurrent. The Pain Practitioner (2010); 20(3); 68-73.

https://frequencyspecific.com/microcurrent-experimental-results-5407/about/

https://frequencyspecific.com/faq/

(2C) Thomas, Brooke. Carolyn McMakin: The Resonance of Repair (A 68 Minute-Podcast Interview with Carolyn McMakin). Liberated Body (23 December 2014); LBP 030.

https://www.liberatedbody.com/podcast/carolyn-mcmakin-lbp-030

(2D) Treating RSD / CRPS With Frequency Specific Microcurrent (a 75-minute YouTube done 18 September 2014 by Dr Carolyn McMakin)

https://www.youtube.com/watch?v=hdIGVjrZ6aQ

(2E) Other YouTubes By Dr Carolyn McMakin

 

 

Woohoo! Australia’s ‘One Girl’, Chantelle Baxter, Is Finally On The Road To Recovery From CRPS, Along With Other CRPS Patients, Thanks To Their Own Guardian Angel, Dr Katinka!

Source of Featured Image of Chantelle Baxter:

http://www.onegirl.org.au/about-us/our-awesome-team

Dear Pain Matters readers,

You may remember reading about Chantelle Baxter, co-founder of ‘One Girl’, in a previous blog post:

https://painmatters.wordpress.com/2017/04/23/one-girl-from-australia-named-chantelle-baxter-is-determined-not-to-let-crps-win/

The great news is that Chantelle has finally started to recover from CRPS following a 15-week treatment program recently completed at The Neurologic Relief Center, Arkansas, USA (headed by Dr. Katinka van der Merwe; links below).

While she looks forward to a FULL recovery from CRPS, Chantelle’s progress so far is nothing short of amazing!  None of this would have been possible without her own Guardian Angel, Dr Katinka van der Merwe!  I am very happy for Chantelle!!

Chantelle’s Own Guardian Angel, Dr Katinka van der Merwe

Growing up in South Africa in a chiropractic family and earning a Doctor of Chiropractic degree at the Parker College of Chiropractic, South Africa, in 1999, Dr van der Merwe DC QNP specializes in the treatment of chronic pain.  Her non-invasive approach focuses on rebalancing the autonomic nervous system, with particular emphasis on the vagus nerve.  Dr van der Merwe and her dedicated team have expertise in many non-invasive treatments including:

  • Restoring tone to the vagus nerve (via gentle, hands-on upper cervical procedure by Dr Katinka);
  • Frequency Specific Microcurrent (for reducing inflammation in the nerves as well as detoxification – see Sunday’s and Jennifer’s CRPS stories);
  • Neuromuscular re-education – This helps the nervous system to ‘reconnect’ with skeletal muscles to restore proper mobility and break poor movement habits;
  • Neurological/nerve rehabilitation;
  • Bioenergetics synchronization technique;
  • Functional medicine and neurology;
  • Neurologic Relief Centers Technique (NRCT);
  • Biologic medicine;
  • Quantum Neurology; and
  • Nutrition/personalized supplementation (based on genetic profiling).

These treatments are constantly reviewed and updated in order to improve success overall rates.

Two treatments are done within the first week to ensure the patient responds before admitting patients into the lengthy 10-week program.

Alexis’ Own Guardian Angel, Dr Katinka van der Merwe

Chantelle is not the only ‘Happy Camper’ after being cared for by Dr Katinka at The Neurologic Relief Center.

Alexis (18) has full-body CRPS that started in her left knee about a year ago.  Alexis received regular Ketamine treatment (1,200 mg) for her painful CRPS that persisted 24/7.  Ketamine helped bring her pain rating down from +’ to ‘4’, albeit with many of the adverse effects of Ketamine.

Recently, Alexis also received treatment from Dr Katinka and her team.  With treatments including Ketamine and ‘Neuromuscular Re-Education’ (the latter done by Dr Katinka), Alexis’ pain rating dropped to ‘0’ for a week (thereafter, ‘2’).

Shortly before this interview was done, Alexis’ pain rating was ‘0’ (NIL.  ZILCH! NADA!!)!  And this occurred after only 4 ‘Neuromuscular Re-Education’ treatments!

For more details, please see this YouTube dated 4 June 2017 called ‘AlexisCRPS 1 1’:

https://www.youtube.com/watch?v=VQUqLXuXh90

Dr Katinka, all I can say is ‘Wow!  Congratulations for doing such a great job!!’

Some Other Amazing CRPS Patients Successfully Treated By Dr Katinka van der Merwe At The Neurologic Relief Center

(1) Barbara Wall’s CRPS Story – http://rsds.org/journey-back-health-rsd/

(2) Jennifer’s CRPS Story –

https://painmatters.wordpress.com/2017/06/28/the-wandering-nerve-and-crps/

Part 2/2 – https://www.youtube.com/watch?v=PLkqMzLv9Xw

Part 1/2 of Jennifer’s Story is in References.  NB Both YouTubes on Jennifer include some treatment details.

(3A) Sunday’s CRPS Story –

https://painmatters.wordpress.com/2017/06/20/frequency-specific-microcurrent-and-other-non-invasive-treatments-for-crps-by-dr-katinka/

https://m.youtube.com/watch?v=6oS-_tZRcmQ

https://www.youtube.com/watch?v=nf_3GoygF4s

(NB This YouTube includes a discussion of Frequency Specific Microcurrent.)

https://m.youtube.com/watch?v=Ddl-iXxpJDU

(4) David’s CRPS Story – https://www.youtube.com/watch?v=hWIaMBhcvA0&sns=em

NB This YouTube includes the patient’s description of Dr Katinka’s gentle hands-on treatment around the upper neck/below head region to activate his vagus nerve.  This targeted and non-invasive treatment to re-balance his autonomic nervous system during the first week of treatment led to rapid and COMPLETE pain relief for David.

(5) Debbie’s CRPS Story – https://www.youtube.com/watch?v=yxgG6RfcrRY

(6) Kristin’s CRPS Story – https://www.youtube.com/watch?v=ltc8fUKhmZM

(7) Madi’s CRPS Story – https://www.youtube.com/watch?v=IVqSGHwmf-E

(8) Scott’s CRPS Story – https://www.youtube.com/watch?v=3p1dOOHDuio

(9) Brock’s CRPS Story – https://www.youtube.com/watch?v=MU7ggYcdJO4

(10) Billi’s CRPS Story – https://www.youtube.com/watch?v=TpMSqe_aXk0

(11) Carlos’ CRPS Story –

Also, please see https://www.youtube.com/watch?v=tC_JyDfvexM&feature=youtu.be, http://rsds.org/new-approach-rsd-crps/ and http://seeingyouwell.com/testimonials/

(12) Brenda’s CRPS Story – http://seeingyouwell.com/testimonials/

(13) For many other CRPS success stories, please view:

https://www.facebook.com/TheNeurologicReliefCenter/?fref=mentions&pnref=stor

Summary

For Dr van der Merwe’s unique insights into CRPS, please click her following guest blog posts on the RSDSA website, particularly the first one:

(1A) Putting Out the Fire: A Brand New Approach to Treating RSD/CRPS (12 April 2016)

http://rsds.org/new-approach-rsd-crps/

(1B) The Myth of a Cure for CRPS (11 October 2016)

http://rsds.org/crps-cure-myth/

(2) The following is a fantastic YouTube called ‘What Do We Do?’ that explains Dr Katinka’s non-invasive treatments for CRPS (and fibromyalgia):

https://www.youtube.com/watch?v=3U6FE1jpmqU

(3) To help CRPS patients further, Dr. Katinka van der Merwe also wrote a book called ‘Putting Out The Fire – New Hope For RSD/CRPS’ (available in Amazon; links below).

I am soooo happy for Chantelle, Alexis and all the other CRPS patients successfully treated by Dr Katinka van der Merwe!  The list of Dr Katinka’s very happy CRPS patients just keeps growing and growing!!

Dr Katinka has literally given the lives back to the aforementioned, and many other, CRPS patients! 

Sabina Walker, Blogger

Pain Matters (in WordPress)

REFERENCES

(1A) Dr. Katinka van der Merwe. Putting Out The Fire – New Hope For RSD/CRPS (24 October 2016); 288 pages.

ISBN-10: 1534832645
ISBN-13: 978-1534832640

https://drkatinka.com/putting-out-the-fire/

(1B) Dr van der Merwe.  Putting Out The Fire (a 4-minute YouTube)

(1C) Dr Katinka’s website

https://drkatinka.com

(2) The Neurologic Relief Center, Arkansas, USA (headed by Dr. Katinka van der Merwe)

http://seeingyouwell.com/about-us/

https://www.facebook.com/TheNeurologicReliefCenter/?fref=mentions&pnref=stor

Neurologic Relief Centers Technique (NRCT)

http://www.nrc.md

(3) Additional YouTubes of CRPS Patients Successfully Treated By Dr Katinka van der Merwe At The Neurologic Relief Center

(3A) Jennifer’s CRPS Story (Part 1/2;  Part 2/2 is incorporated in this Blog Post, above.)

 

 

CRPS Is Not ‘Rare’ In Fracture Patients

An important update on 29 April 2017 (regarding good news about Chantelle Baxter):

Great news!!  Chantelle Baxter is finally on the road to recovery from CRPS!

https://painmatters.wordpress.com/2017/04/29/woohoo-australias-one-girl-chantelle-baxter-is-finally-on-the-road-to-recovery-from-crps/

I am so thrilled and happy for her!  We need many more stories like this!

 

Dear Pain Matters readers,

Complex regional pain syndrome (CRPS) is often said to be ‘very rare’.

However, one does not have to look far to read or hear about someone with this medical condition.

My previous blog posts introduced 2 young and courageous women:

  • A Canadian named Paula Orecklin (29) from Winnipeg (nicknamed ‘Winterpeg’, for obvious reasons) (see bottom for links); and
  • An Australian named Chantelle Baxter (32), from ‘The Land Down Under’, Melbourne, Australia (see bottom for link).

While Paula and Chantelle grew up in 2 very different parts of the world, 15,000 km away from each other, both women share at least one thing in common.

On behalf of all Canadians living with chronic pain, Paula Orecklin was formally selected to be an Olympic torchbearer for the 2010 Vancouver Olympic Winter Games.  What an honour this is!

Meanwhile, Chantelle Baxter set a goal to educate one million (1,000,000!) girls in Africa by 2020!

Not only are both women truly amazing and inspirational, but sadly, both women also share a very painful medical condition called complex regional pain syndrome (CRPS).

How many others are there in this world just like Paula and Chantelle who are battling CRPS at this very moment??

Statistics of CRPS in Fracture Patients

The following 4 medical papers offer some insight into the incidence of CRPS in fracture patients.  Specifically, these studies state that CRPS may arise in (anywhere from) 7% to 48.5% (ie almost half!) of all fracture patients following fracture and treatment.

(1) A Korean study showed that 42 of 477 (ie 8.8%) of all surgically-treated wrist fracture patients developed CRPS1. Specifically, females with a high energy wrist trauma or a severe comminuted fracture had the highest risk of developing CRPS1 after surgery (Roh et al, 2014).

(2) A Dutch study reported similar results, whereby 7% (42 of 596) of all fracture patients developed CRPS1 following ER treatment (using the Harden and Bruehl diagnostic criteria). Alternatively, if the IASP diagnostic criteria for CRPS1 are applied, 48.5% (ie 289 of the same 596 fracture patients) had CRPS1 after treatment. Meanwhile, if the Veldman criteria were used, 21.3% of the same fracture patients (ie 127 of 596) developed CRPS1 after treatment. Thus, depending on the diagnostic criteria used for CRPS1, between 7% to almost half (!) of all 596 fracture patients developed painful CRPS1 following treatment.

Furthermore, all patients who developed CRPS1 after fracture and treatment still had ongoing severe pain and other CRPS1 symptoms that persisted even at 1-year follow-up. The Dutch researchers added that those who sustained an ankle fracture, dislocation or intra-articular fracture were at highest risk of developing painful CRPS1 (Beerthuizen et al, 2012).

(3) A Tunesian study reported that CRPS1 occurred in 32.2% (29 of 90) of all distal radius fracture patients following treatment involving closed reduction and casting. In other words, CRPS1 occurred in almost 1 in 3 distal radius fracture patients during the 3rd and 4th week after cast removal! Those at highest risk were females who reported severe pain and impairment of physical quality of life following comminuted, operated and casted wrist fractures (Jellad et al, 2014).

(4) An Italian study reported that CRPS occurred in anywhere from 1% to 37% of all fractures following orthopedic surgery, depending on the severity of the fracture. Patients at highest risk were women, older people, smokers and those with reduced bone strength. Early diagnosis is linked with remission in up to 90% of all cases. Where diagnosis of CRPS was delayed, electroanalgesia (e.g. spinal cord stimulation) sometimes offered promising results (Corradini et al, 2015).

I don’t know about you … but if the number of fracture patients who develop CRPS varies anywhere from 7% to almost half (!) of all fracture patients (depending on the criteria used to diagnose CRPS), this certainly does not sound like a ‘rare’ condition.

Summary

The good news is that if diagnosed and treated early, recovery from CRPS is likely.  Having said this, part or full recovery from CRPS is still possible in some cases even if diagnosed later (see large, 6-page Table in our review paper; Walker and Drummond, 2011).

Here’s to hoping that these statistics hit home with a strong message that CRPS is not rare, especially in fracture patients.  Complex regional pain syndrome does not discriminate based on age, gender, culture, race, skin colour, religion or any other criteria.

Clearly, the goals should be:

  • Early diagnosis of CRPS.  If unsure, pain and other medical specialists may be helpful with diagnosis;
  • Prompt referral to pain and other medical specialists;
  • Timely and effective treatment for CRPS; and
  • Regular follow-up until pain and other symptoms of CRPS are properly managed and/or reversed altogether.

Continuing research into CRPS is warranted.

After all, there may be a lot more ‘Paula’s’ and ‘Chantelle’s’ in this world battling CRPS than originally thought!

Sabina Walker, Pain Matters blogger

REFERENCES  

Incidence of CRPS following Fracture

(1) Roh YH, Lee BK, Noh JH et al. Factors associated with complex regional pain syndrome type I in patients with surgically treated distal radius fracture. Arch Orthop Trauma Surg (Dec 2014); 134(12): 1775-1781.

doi: 10.1007/s00402-014-2094-5

https://www.ncbi.nlm.nih.gov/pubmed/25311113

(2) Beerthuizen A, Stronks DL, Van’t Spijker A, Yaksh A, Hanraets BM, Klein J, Huygen FJ. Demographic and medical parameters in the development of complex regional pain syndrome type 1 (CRPS1): prospective study on 596 patients with a fracture. Pain (June 2012); 153(6): 1187–1192.

doi:10.1016/j.pain.2012.01.026

http://rsds.org/wp-content/uploads/2014/12/Demographic-medical-parameters.pdf
https://www.ncbi.nlm.nih.gov/pubmed/22386473

(3) Jellad A, Salah S, Ben Salah Frih Z. Complex regional pain syndrome type I: incidence and risk factors in patients with fracture of the distal radius. Arch Phys Med Rehabil (March 2014); 95(3): 487-492.

doi: 10.1016/j.apmr.2013.09.012.

https://www.ncbi.nlm.nih.gov/pubmed/24080349

(4) Corradini C, Bosizio C, Moretti A. Algodystrophy (CRPS) in minor orthopedic surgery. Clinical Cases in Mineral and Bone Metabolism (2015); 12(Suppl 1): 21-25.

doi: 10.11138/ccmbm/2015.12.3s.021.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4832412/

Examples of Patients who have Partly or Fully Recovered from CRPS following Anti-Inflammatory Treatment

(5) Walker, Sabina, Drummond, Peter D. Implications of a Local Overproduction of Tumor Necrosis Factor-α in Complex Regional Pain Syndrome [Review Paper]. Pain Medicine (Dec 2011); 12(12): 1784–1807 (24 pages).

(See large, 6-page table on pages 1791 – 1796.)

http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4637.2011.01273.x/abstract

CRPS Patients Discussed in this Pain Matters Blog

(6) Paula Orecklin

https://painmatters.wordpress.com/2017/04/10/lets-talk-to-an-inspirational-young-woman-paula-orecklin-about-crps-sativex-physiotherapy-and-neuroplasticity/

https://painmatters.wordpress.com/2017/04/11/happy-disabiliday-on-april-1-a-letter-to-you-all-from-paula-orecklin-a-crps-patient-from-canada/

(7) Chantelle Baxter

https://painmatters.wordpress.com/2017/04/23/one-girl-from-australia-named-chantelle-baxter-is-determined-not-to-let-crps-win/

(8) Four (4) CRPS Patients Including Paula Orecklin

https://painmatters.wordpress.com/2014/10/26/crps-video-on-crps-by-parc-a-crps-website/

‘One Girl’ From Australia Named Chantelle Baxter Is Determined Not To Let CRPS Win!

Source of Featured Image:

Go Fund Me – Help Chantelle heal from CRPS

https://www.gofundme.com/chantellebaxter

Dear Pain Matters blog readers,

Today I would like to write about a very brave and inspirational young woman named Chantelle Baxter, a 32-year old entrepreneur from Melbourne, Australia, who sadly developed complex regional pain syndrome (CRPS) last year after twisting her left ankle during a hike in Portland, Oregon.

Chantelle is undergoing a 10-week pain treatment program at The Neurologic Relief Center, Arkansas, USA (headed by Dr. Katinka van der Merwe).  Because of its expenses, Chantelle is grateful for any donations (via ‘Go Fund Me’) that may help finance her pain treatments:

https://www.gofundme.com/chantellebaxter

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1492436807354.jpg
Chantelle Baxter (above 2 photos, before CRPS, including a photo with her partner)
Source of image:  The Age (17 April 2017).
http://www.theage.com.au/victoria/someone-was-melting-the-bones-inside-my-legs-chantelle-baxter-battles-rare-disease-20170416-gvly65.html

CRPS is Not ‘Rare’ in Fracture Patients 

Complex regional pain syndrome is often said to be ‘very rare’.

However, the next blog post highlights 4 medical papers that suggest otherwise.  Specifically, these studies state that CRPS may arise in anywhere from 7% to 48.5% (ie almost half!) of all fracture patients following fracture and treatment.

I don’t know about you … but if the number of fracture patients who develop CRPS varies anywhere from 7% to almost half (!) of all fracture patients, this certainly does not sound like a ‘rare’ condition!   

See next blog post for statistical details about CRPS in fracture patients.

https://painmatters.wordpress.com/2017/04/26/crps-is-not-rare-in-fracture-patients/

Who is Chantelle Baxter?

Several years ago, Chantelle set a goal to educate one million (1,000,000!) girls in Africa by 2020.  To help achieve this altruistic goal, Chantelle co-founded ‘One Girl’, one of Australia’s fastest growing non-profit organizations.  So far, One Girl has already reached out to thousands of girls and women in Sierra Leone and Uganda.

http://www.onegirl.org.au/why-girls

Chantelle was recently selected as one of the ’30 Influential Aussie Women Under 30′ as well as ‘Melbourne’s Top 100 Most Influential People’ by Melbourne’s paper, The Age.

Wow!  This is One Girl with One Big Heart!!

Chantelle’s Current Challenge:  CRPS Caused by a Twisted Left Ankle During a Hike 

Chantelle has painful CRPS caused by a twisted left ankle that occurred during a hike last year in Portland, Oregon.  While Chantelle did not fracture her left ankle, her entire left foot started to burn with severe pain and it became ‘incredibly swollen’ with ‘a purple, red colour’.

Chantelle flew back to Australia from Portland, Oregon, the very next day after her hike.  Sadly, by the time she landed, she could hardly put any weight on her left foot.  Quoting Chantelle:

‘By that stage my foot was a strange purple, red colour and incredibly swollen … I knew something was very wrong — so I spent the next six weeks getting every test under the sun — MRI, ultrasound, bone scan, CT scan, blood work — I visited specialist after specialist and none of them could give me an answer about what was going on …’

Chantelle continued:

‘… and eventually I gave up trying to find an answer and flew back to the US, where a doctor finally diagnosed me with CRPS [in January 2017].’

Chantelle describes CRPS as (quoting):

“someone is melting the bones inside my legs. Like I’m being burnt alive from head to toe. Or that my entire body was being dipped in acid.”

https://www.gofundme.com/chantellebaxter

Despite nicknaming CRPS ‘The Suicide Disease’ (due to the extreme pain levels that she endured), Chantelle is not known as One Girl who gives up easily in the face of adversity and challenge.

As stated earlier, Chantelle is undergoing a 10-week treatment program at The Neurologic Relief Center, Arkansas, USA (headed by Dr. Katinka van der Merwe).

Chantelle’s treatments for CRPS include:

  • ARP Wave therapy;
  • Frequency Specific Microcurrent; and
  • Daily chiropractic adjustments to release the pressure on her vagus nerve (see References on Dr. Kevin Tracey’s extensive research on the importance of the efferent vagus nerve including its role in inflammation and pain).

http://www.news.com.au/lifestyle/health/health-problems/chantelle-baxter-is-battling-the-most-painful-condition-on-earth/news-story/39e06339bdd284e14ad9e3ceed831d83

1492436807354-2.jpg

Source of image:  Cunningham, Melissa. The Age (17 April 2017).
http://www.theage.com.au/victoria/someone-was-melting-the-bones-inside-my-legs-chantelle-baxter-battles-rare-disease-20170416-gvly65.html
(There is also a 2-minute video in this link.)

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Source of image:  https://www.gofundme.com/chantellebaxter

Summary

Here’s hoping for this One Girl’s speedy recovery from CRPS!

Sabina Walker

Pain Matters blogger

An Important Update

Please see my update on 29 April 2017 on Chantelle Baxter, who is finally starting to recover from CRPS!:

https://painmatters.wordpress.com/2017/04/29/woohoo-australias-one-girl-chantelle-baxter-is-finally-on-the-road-to-recovery-from-crps/

REFERENCES

About Chantelle Baxter and One Girl

(1) Cunningham, Melissa. ‘Someone was melting the bones inside my legs’: Chantelle Baxter’s CRPS battle. The Age (17 April 2017).

http://www.theage.com.au/victoria/someone-was-melting-the-bones-inside-my-legs-chantelle-baxter-battles-rare-disease-20170416-gvly65.html

(2) Mayoh, Lisa. Chantelle Baxter is battling the most painful condition on Earth. News (19 April 2017).

http://www.news.com.au/lifestyle/health/health-problems/chantelle-baxter-is-battling-the-most-painful-condition-on-earth/news-story/39e06339bdd284e14ad9e3ceed831d83

(3) Markwell, Lauren. Go Fund Me – Help Chantelle heal from CRPS (26 March 2017).

https://www.gofundme.com/chantellebaxter

(4) One Girl

http://www.onegirl.org.au/why-girls

Dr. Kevin Tracey’s Research on the Efferent Vagus Nerve and its Role in Inflammation and Pain

(5) Behar, Michael. Can the Nervous System Be Hacked? The New York Times (Magazine) (23 May 2014).

http://www.nytimes.com/2014/05/25/magazine/can-the-nervous-system-be-hacked.html

(6) Vince, Gaia. Hacking The Nervous System. Mosaic Science (26 May 2015).

https://mosaicscience.com/story/hacking-nervous-system

(7) Fox, Douglas. The Shock Tactics Set to Shake Up Immunology. Nature (04 May 2017); 545: 20–22.

doi: 10.1038/545020a

http://www.nature.com/polopoly_fs/1.21918!/menu/main/topColumns/topLeftColumn/pdf/545020a.pdf

(8) Koopman FA, Chavan SS, Miljko S, Grazio S, Sokolovic S, Schuurman PR, Mehta AD, Levine YA, Faltys M, Zitnik R, Tracey KJ, Tak PP. Vagus Nerve Stimulation Inhibits Cytokine Production And Attenuates Disease Severity In Rheumatoid Arthritis. PNAS (2016); 113(29): 8284-8289.

doi: 10.1073/pnas.1605635113

http://www.pnas.org/content/113/29/8284.abstract

“Happy Disabiliday!” A Letter To You All From Paula Orecklin, A CRPS Patient From Canada

Featured image and photo credit:  Dario Schor 

You may remember Paula Orecklin, the inspirational Canadian CRPS patient whom I wrote about in yesterday’s blog post:

Let’s Talk To An Inspirational Young Canadian Woman, Paula Orecklin, About CRPS, Sativex, Physiotherapy and Neuroplasticity

https://painmatters.wordpress.com/2017/04/10/lets-talk-to-an-inspirational-young-woman-paula-orecklin-about-crps-sativex-physiotherapy-and-neuroplasticity/

(There are additional References and Links at the end of this blog post.)

This week, Paula sent me a beautiful letter to share with all of you (see below).  Paula’s letter contains a very important message for everyone, on behalf of all people living with disabilities including chronic pain.

I feel delighted and honoured that Paula decided to share her inspiring letter and beautiful photos with my Pain Matters Blog (as well as any other media that Paula chooses).

Upon reading Paula’s letter, I thought to myself,

“Paula’s idea to start a ‘Disabiliday‘ tradition for patients whose lives are challenged by disability and pain is fabulous!  In fact, any day, whether it is April 1 or otherwise, is a great day to celebrate people who face adversities and obstacles due to disability including pain, and to also be grateful for our own blessings.”

Quoting from Paula’s her own words written to all of you from the bottom of her beautiful, caring and generous heart:

This past Saturday, April 1, 2017, I held the world’s newest disability holiday – Disabiliday. I just entirely made up a holiday. I figure someone has to have started every other celebration, so why can’t I do the same?

Last year, I had my 15th anniversary of having Complex Regional Pain Syndrome, a severe chronic pain disease. With such a large milestone, I knew I could either get very depressed, or make something positive out of it. It wasn’t something I could just ignore. Instead, I chose to make a celebration out of it. I hadn’t just been in pain for 15 years – I was in pain for 15 years and was still going.

It became my Disabiliday.

The event turned out to be so positive and wonderful that I decided to hold a second one this year. I ended up making more progress this past year than I ever had, in terms of function and ability. I wanted to celebrate that as much as anything – that I’ve been in pain for 16 years and am now going somewhere. I don’t really know where yet, but I figure I have another year to figure that out.

I think Disabiliday could also be relevant to other people with disabilities. When you’re disabled, you can often feel isolated, or like you’re not having the same kind of lifetime milestones other people have. Maybe you can’t move out and have a housewarming, or maybe you can’t have a long term relationship with engagement and marriage and babies. Of course, plenty of people with disabilities do just those things and I’d never discount them or their lives – but I, at least where I am right now, don’t feel like I’m able or ready for them. And even birthdays can feel like you aren’t where you should be in life, especially compared to people around you.

So I wanted to do something new and different. I wanted something that fit where I am in life, where I am emotionally.

And thus, Disabiliday. A day to celebrate that despite the amount of pain I’m in, despite the limitations my disease has enforced, I still am. I still have worth. I still have a presence in people’s lives. I still am going.

Surrounding myself with the support structure I’ve been so lucky and honoured to have found in my life, I was able to sit back and take in just how many people love and care about me. Without them, I would never have gotten through so many years of pain. They’ve made the time worth it.

Disabiliday is a way of reinforcing my place in life. The place in my life, and in my family and friends’ lives. Emotionally and psychologically, all of the normally invisible ways people care were made evident. It might seem silly to just make up a holiday out of nothing but a terrible pun my friend came up with to have a Disabilitea Party that I later expanded because if I’m going to make up a celebration I might as well get a full day out of it, but the meaning really is there.

And it was a lot of fun too. I got my hair and makeup done at Sephora and Mario’s Salon (now Aura Polo Park) respectively last year and felt amazing once I was all made up. This year I got my hair highlighted, trimmed, and makeup all done at Aura Garden City. It’s superficial to some extent, but I felt so much better once finished. It’s an external thing, of course, but that doesn’t mean it doesn’t matter.

Last year we went to Sam Po Dim Sum and also introduced all of my non-Jewish Winnipegger friends to the deliciousness that is a shmoo torte from Gunn’s Bakery. It’s this layered angel food and whipped cream confirmation that’s North End of Winnipeg Jewish tradition.This year I upped my game with a wonderful dinner at Kildonan Park’s Prairie’s Edge restaurant and a cane cake from Dolce Bake Shop.

I’ve used two canes for quite a few years now (when I wasn’t in a wheelchair), and I’m finally, finally starting to walk on my own. In fact, I made a great entrance to my party by walking in. That alone made the night amazing.

IMG_0291.JPG

Photo Credit:  Dario Schor

But I wanted to step it up. I went to this awesome bakery (I recommend the chocolate cupcakes with pistachio buttercream icing) and had the pastry chef make a custom cake for me- a replica of one of my canes.

And man, did slicing that thing up feel good!

IMG_0319-3.JPG

Photo Credit:  Dario Schor

Other highlights of this year’s Disabiliday party included a featured guest, my physiotherapist Maria Pawlyshyn of Movement360 Inc. She is a huge part of why I’ve made so much progress this past year. Working with her, I’m doing better than I ever have since developing Complex Regional Pain Syndrome.

Other features included a dinosaur balloon- a DisabliT-rex of course (I hate myself for these puns just as much as you do) – and a truly stunning purse my mom and I designed and she made for the event (see top photo). We’ve made a lot of purses over the years, but this one has to be one of the best. Just really gorgeous. The writing on the front of it is my handwriting.

DisabiliTrex and I.jpg

Photo Credit: Dr George Fulford

We also filmed the Disabiliday parties for a documentary Dr. George Fulford of the University of Winnipeg and I have been filming for a few years now, with the assistance of Steven Mellor for sound. Originally meant to be the first of a series of five minute videos of young adults with disabilities, this project has ended up capturing the huge amount of progress I’ve made over the past couple years. I was at my worst, nearly entirely wheelchair bound, when we started this project and I’ve made such huge gains. To actually walk on my own – I never expected ever to do that again in my life.

In other bragging about things news, my wonderful friends got me the most amazing sets of rings for a Disabiliday present. This isn’t quite as materialistic as you might think. For many years now, I’ve developed open sores and wounds all over my body. My doctors think that with the amount of pain I’m in, always, the skin has just sort of gotten very weak and opens up into wounds. I don’t do anything to create them, I’d like to explain – they just open up without any influence or action on my part. They eventually close up but leave scars. Even though the scars eventually start to fade, it doesn’t help because more new wounds have already opened up.

To detract attention from all of my wounds, I wear lots of rings (and wear makeup) to both cover up wounds on my fingers and to attract attention away from wounds on the rest of me. My friends know this, and so rings really do mean a lot to me. Plus they are adorable and I totally love them too.

So Disabiliday does really have some meaning. One one level, I realize how weird – and how self-important – it is to make up your own holiday and expect people to celebrate it. On another hand, this matters to me, and my friends honestly do support it. If it makes me feel better, if it doesn’t harm anyone else…why not? Maybe a lot of people – if they were to ever even hear about it – will think me stuck up or even that I’m celebrating being a victim of my disease, but I can’t help that. All I can do is lay out my reasoning here and hope maybe other people might understand. That’s really all anyone can ever do, really.

Finally, I want to thank Prairie’s Edge for hosting us, Dolche Bake Shop for a delicious cane, and Aura Garden City for totally making me over.

And I really want to thank my best friend, Eryn Schor, for not only organizing both of my Disabiliday events, but actually sticking around for the better part of five hours as I got all made up. Now there is a truly loyal friend! She means so much to me and has been by my side since we met in elementary school. Without her, these events would never have happened.

Thanks also go to Dr. George Fulford for filming the whole event – and for filming my life over the past few years, and to Steven Mellor on sound. Dealing with that boom mike was not easy!

And lastly, thanks to my parents. My dad was unable to be in town for the event, so we just got him on Skype on a phone to take some family photos. With my parents, all of my friends, and my health care providers, with all of their love, care, support, understanding, work, and through their thought, research, and education, I can truly say that despite the amount of pain I’m in, the past 16 years have been entirely worth it.

Happy Disabiliday!

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Photo Credit:  Dario Schor

I am certain that most of you will be equally touched by Paula Orecklin’s letter just as I am!

Sabina Walker, Pain Matters Blogger

PS  Are there any thoughts on Paula’s idea of a ‘Disabiliday‘ tradition from the rest of you in ‘Pain Matters Blog Reader-Land’?  If yes, please feel free to comment…

FURTHER REFERENCES AND LINKS ON PAULA ORECKLIN, CRPS PATIENT:

(1) Paula Orecklin – UNE Patient Case Study – April 4, 2013

https://www.youtube.com/watch?v=_aAVOCGW5ac

(2A) CRPS Video on CRPS by PARC (a CRPS website)

https://painmatters.wordpress.com/2014/10/26/crps-video-on-crps-by-parc-a-crps-website/

(2B) This blog post also includes details and links to a video/DVD called:

Living a Life in Pain – The Story of RSD/CRPS (by Sarah Panas, film maker):

http://www.rsdcanada.org/parc/english/parc/news.htm

This video is also accompanied by a 5-minute trailer:

Living a Life in Pain: The Story of RSD/CRPS – Trailer’

http://www.youtube.com/watch?v=uB1TPVND9iU